Photos … Written by Gigglebug MaMa Advertisements Share this:TwitterFacebookLike this:Like Loading... Related 22 thoughts on “Photos …” Gluten free???? Yes??? No:( Reply Yes. Reply Everything but the tortillas pictured with the tri tip burritos and the chicken salad (I had my chicken salad on lettuce as shown) Reply I love the namaste flour from costco, cheapest GF flour I have found, not paleo friendly, but works for me… Reply Reply I need to make a Casco trip. Jaydon needs a total makeover diet. For now he’ll have to be on the amino acid diet only and them slowly introduce foods… Ugh. Can you imagine? Reply Yes. Did it for Kyle for 2 years Reply I’m here if you need help Reply The only thing that actually got Kyle OFF only the amino acids was Master Supplements Probiotics, Enzymes, and Fiber… We had to heal his gut before he could eat anything, his eosinophil levels were through the roof 😦 Reply I know you did. He’s already crying at the thought of not eating any food, just drinking the nasty stuff… And I’m crying with him. Secretly 😦 Reply Yes, that’s what he has. Eosinophilic gastritis. We did start the probiotics as well. I’m not sure he needs more fiber… Who is his GI? Reply They have flavored formula, but it’s still nasty – EO28 splash is the best tasting one so far. We see dr Au Yeung, have seen MANY, but honestly none of them were able to help us, we had to seek alternative therapies to get anywhere Reply We see dr woods for allergies, and he is awesome…. Reply We have an appt with Dr Woods on April 15. We’ve been seeing Dr Mogul for GI. He’s been really nice and communicates directly through mychart, but he told me that honestly they don’t see eosinophilic gastritis in kids. I looked up medical literature and there is nothing on it. There are some things on eosinophilic esophagitis which probably apply, but still… It’s killing me to see him so sick and nothing seems to help. Maybe the formula will… If he can keep it down. Reply It is nasty. I’m so heartbroken for poor Jaydon 😦 yep. ky has Eosinophilic Esophagitis and gastritis, it’s a weird combo. Honestly I haven’t been confident in the docs treatment plans because there is so little information out there. The book “what’s eating your child” is pretty awesome, I have a copy you may borrow next time I see you if you want to read it. It is a very nice read for balancing the gut. I can also give you a couple juice boxes of each flavor of the EO28 splash, it’s kind of expensive and only available by the case, so if it’s a flavor he hates, you get stuck with it 😦 Kyle finally is having clean scopes, and his eosinophil level is down to “acceptable” levels at around 2-5 (which are probably due to environmental exposure vs ingesting)… vs as high as they have been was a little over 100! (Ideal is 0) Reply Are these blood levels of eosinophils? Jaydons blood leeks are normal, just the gastric mucosa is messed up. Esophagus is fine too! Go figure ID love to borrow the book, and maybe try the EO28 to see if he likes it. Reply Yeah, Kyle’s blood levels were off the charts Reply :(. So for him it’s a systemic issue, for Jaydon it’s more localized. We tested him for chrons but that seems to be nagative, thank God! Reply Negative* Reply Crohns stinks, but at least there is a lot of research available!!!!! I hate getting a diagnosis that leaves me with nothing to look up Reply I will be in soon, MRI, urology studies, and ortho consults in the next month, hopefully you will be there one of the days 😉 Reply I feel the same way! I wanted a diagnosis because I felt that that would bring us closer to a solution. Not so much… Yes, let me know when you’re around Reply Leave a Reply Cancel reply Enter your comment here... Fill in your details below or click an icon to log in: Email (required) (Address never made public) Name (required) Website You are commenting using your WordPress.com account. ( Log Out / Change ) You are commenting using your Twitter account. ( Log Out / Change ) You are commenting using your Facebook account. ( Log Out / Change ) You are commenting using your Google+ account. ( Log Out / Change ) Cancel Connecting to %s Notify me of new comments via email.